Journal article
A comparison of Australian and French families affected by sarcoma: Perceptions of genetics and incidental findings
V Rasmussen, LE Forrest, M Rogasik, M Girodet, P Meeus, MP Sunyach, JY Blay, O Bally, M Brahmi, ML Ballinger, E Niedermayr, DM Thomas, J Halliday, P James, I Ray-Coquard, MA Young
Personalized Medicine | FUTURE MEDICINE LTD | Published : 2018
Abstract
Aim: To compare Australian and French perceptions of genetics and preferences regarding the return of incidental findings. Methods: Participants from the International Sarcoma Kindred Study received a survey at intake to cancer referral units. A total of 1442 Australian and 479 French individuals affected by sarcoma and their unaffected family members responded to four hypothetical scenarios depicting hereditary conditions of varying treatability and severity. Results: Australians' preference for the return of incidental findings was consistently higher than French for all scenarios. Country group differences were significant for two scenarios when individual characteristics were controlled ..
View full abstractRelated Projects (1)
Grants
Funding Acknowledgements
We gratefully acknowledge the time andinput of participating ISKS families living in Australia and France and theimportant contributions of the following Australian hospitals including, Peter MacCallum Cancer Centre, Royal Adelaide Hospital, Royal Prince Alfred Hospital, Prince of Wales Hospital, Princess Alexandra Hospital and Hollywood Private Hospital and the Centre Leon Berard in Lyon, France. In addition, we give thanks to the ISKS Global Consortium for permission to use their researchresource. In particular, we are very appreciative of the Australian and FrenchISKS Global Site Investigators for their assistance with data collection andtransfer. Lastly, we acknowledge the following funding bodies: Rainbows for Kate Foundation, Australasian Sarcoma Study Group, Liddy Shriver Sarcoma Initiative and Dam's InfoSarcome.